GD05 ‘Ghosts’: changing perceptions of people with albinism in Tanzania

Abstract Albinism, derived from the Latin word albus meaning white, is a rare genetic condition characterized by an absence of melanin leading to individual having pale skin, eyes and hair. It believed that Tanzania has highest rate albinism in Africa with autosomal recessive gene being carried one 19 Tanzanians impacting 1400 people (Cruz-Inigo AE, Ladizinski B, Sethi A. Albinism Africa: stigma, slaughter awareness campaigns. Dermatol Clin 2011; 29:79–87). We aim analyse perception individuals strive consider future those reflect on work done. A recurring theme throughout literature fact living are often shrouded mysticism, stigma violence. Referred as ‘ghosts’, they fringes society, ostracised their communities labelled supernatural powers. this superstition led brutal attack murder members disenfranchised albino population belief body parts, which can be sold for high $75 000, bring luck, well possessing only recent times attention been brought plight begun unravel these deeply entrenched beliefs. The United Nations (UN)-sanctioned International Awareness Day 13 June aims shed light done support globally. In 2013, UN Human Rights Council adopted legislation prevent violence against albinism, 2015 Mandate Independent Expert enjoyment human rights persons albinism. lot ground charitable organizations empower through education provision safe shelter resources. role dermatologists cannot ignored. Owing decreased levels there increased risk skin cancer due lack protection ultraviolent radiation. Dermatologists play crucial role, part multidisciplinary team, providing prevention education, reduce (McBride SR, Leppard BJ. Attitudes beliefs towards sun avoidance: advice services provided outreach clinic Tanzania. Arch 2002; 138:629–32).